Blimey ....... has it really been nearly 3 weeks since I last blogged?? Naughty Me!! Lol. I fear I have been suffering with write...

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Blimey ....... has it really been nearly 3 weeks since I last blogged??

Naughty Me!! Lol.

I fear I have been suffering with writers block ........ or possibly just lazy sod syndrome.  
But never fear ...... I am back. (I can hear you all breathing that big sigh of relief. Lol.)

So ....... what has been happening in my exciting life in the past few weeks, I hear you all ask .........

After my last (rather depressing, but necessary) post I started suffering with chest pain, dizziness, shortness of breath and tingling in my arms, hands and face.  Off to the doctors I went, and he informed me that, "no, you are not having a heart attack ....... you are suffering with anxiety attacks".   Phew.
He prescribed me with Diazepam, but I must admit I have been too afraid to take it!  I am unsure of the effects it will have on me, and with 4 children to take care of, I need to have my wits about me. 
I have collected the prescription, and it is locked away in case I decide I need it in the near future.  
So far, I seem to be coping without it.

I still have my daily wobbles, and the kids are still going through their own daily struggles, but I am trying not to let things drag me down.
I have made enquiries about extra help we can receive as a family, both financially, and emotionally, and the ball is rolling in  the right direction, so that is a good start.

Boo has had a review with his consultant since my last post, and things seem to be changing direction.  
After telling me they were pretty certain that Boo has ASD, they are now saying they are not so sure, which is very frustrating.  
He was sent for blood tests (which was not as bad as I had expected it to be) and has now had genetic/DNA testing for Fragile X Syndrome.  
Something else for me to read and worry about. (Yes, I know we shouldn't, but I just can't help it).  

Now we have to suffer the torturous wait for the results, which can take up to 8 weeks!  
Not fun.

This may sound awful, but in a way I want the tests to show something.  At least then we will finally have some answers, and will be able to start on the correct path to getting Boo what he needs. 

And then on the other hand, we want the test to come back clear.  After all, no one wants there to be anything wrong with their children.
If it does come back positive for Fragile X, we then have to go through the horrible task of having the whole family tested, and then will have to wait another 6-8 weeks, only to find out if any of the other children will have any problems, (mainly Little Man, as he will be most at risk), and to find out whether it was myself, or Daddy D that has passed this horrible genetic problem onto our gorgeous child/children.  

Unfortunately, we also met with the educational psychologist, who has informed me that they will not statement Boo, as he is not "severe" enough!  There aren't enough words to express how angry I am about this at the moment, but I WILL get him his statement eventually, and will not sit back and let them keep on palming me off until Boo's education is at the point of no return!

Anyway, enough of the depressing stuff.

On a more positive note,  Roo and I celebrated our birthdays on the 19th July.  Such a special gift ...... to share our birthday!  
We had a lovely day, and both did very well for ourselves gift wise.  Roo received too many to mention, and was delighted with every single one. 





My gorgeous hubby, Daddy D got me one of the best birthday gifts I have ever received!   
Manolo Blahniks!!!!!  (For those that don't already know, Manolo Blahniks are designer shoes.)  
They are totally amazing.  
Although, I must admit, I am afraid to wear them in case I mark them.  Lol.




Then, on the 25th July, Daddy D and I celebrated our wedding anniversary, and were able to arrange a weekend without the children!  
We had such an amazing time.  
On the Friday, we went for a meal, and then to see the new Harry Potter film (which I really enjoyed).  
On the Saturday morning we took the train to London.  We went on the London Eye, saw the Houses of Parliament and Big Ben, went to Buckingham Palace and then saw "Wicked" at the Apollo Victoria Theatre. We then stayed in an amazing hotel!!  As it was our anniversary, the hotel upgraded our room, and left a lovely little note for us, with some complimentary goodies.  
So lovely.  
On the Sunday, we checked out of the hotel and took a little trip to Trafalgar Square before catching the train home.
We had such a lovely time together.  
No stress, no arguments, just quality time together that we really, really needed.

On top of all that, Little Man has been coming along in leaps and bounds over the past week or so, bless him.
He is rolling around the floor, and shuffling himself backwards across the room.  He has learnt to clap his hands, and is finally able to sit up on his own! (I was starting to worry as he hadn't achieved this yet .... silly mummy).



All in all, the last few weeks have been largely positive.  I have managed to get some rest, and quality time with Daddy D, as well as having some really lovely times with all of the children.

The summer holidays are now upon us.  It's not going to be an easy 6 weeks, but I am determined to try my hardest to remain positive and happy, for myself, and for my gorgeous children!


Missy xx





About Missy B

Marissa Bird is a busy mum of six, blogging the realities of parenting, whilst trying to keep her sanity by reading books and taking photographs in her spare time... if she can ever find any!

2 comments:

  1. So glad u had a lovely birthday and anniversary. Hope u all have a fantastic summer holidays together xxx

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  2. We've been thru all these tests too & yes they are horrible & stress u out, they are necessary in your journey to get what is needed for your family. Really hope u get some answers soon. Glad u got some time with your husband. Am very jealous! X

    ReplyDelete

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About Missy B

About Missy B
Missy B is a busy mum of six, blogging the realities of parenting, whilst trying to keep her sanity by reading books and taking photographs in her spare time... if she can ever find any!

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