It's been a while since I have written about Boo.  In fact it has been a while since I have written much about anything at all. The...


It's been a while since I have written about Boo.  In fact it has been a while since I have written much about anything at all.
There never seem to be enough hours in the day to do all of the things that I want need to do and things are about to get even busier more stressful.

We have been thinking about things for a while, and watching Boo's progress carefully, while trying to decide what to do for the best.  We have finally come to the decision that we should apply for a Statement of Special Education Needs for him.
When we first considered it a year or so ago we were put off by Boo's Educational Psychologist who told us that there is no chance that he would be given a Statement, as his needs are not 'severe' enough. 
Since then we have spoken to many professionals, including his Occupational Therapist, his Specialist Consultant, and the Health Visitor from our local 0-19 team.
Everyone is in agreement that trying to obtain a Statement for Boo is the best right thing to do.

I have to admit here that I have absolutely no clue what I am doing when it comes to this process. It seems to be a very complicated process and no one volunteers the information you need to make it easier, and less stressful.

I am lucky enough to have an amazing health visitor who has been through the process herself, for her own son, and she has been wonderful with pointing me in the right direction and advising me in respects of who to talk to for more detailed information about the Statement process.  She is also more than happy for me to ring her and ask any questions, which is really kind of her.
I have also been put in touch with a lovely lady from Parent Partnership who has sent me lots of information to help with knowing what happens during the application process, what kind of information will be looked at and what we can do to help the process go a little smoother.

I am still trying to work my way through the paper work but was able to go and meet with Boo's head teacher to inform her of our decision.
I half expected to be shot down by the school at this point and told that they don't think he needs the Statement, but they have actually been very understanding and supportive about the whole thing.
I was sure to be very clear to them that it is in no way a criticism of the work they have done with Boo, as they have been very good with him.  He has made progress since starting at the junior school but it is time to face the fact that this little bit of progress will never be enough to catch him up to the level he is expected to reach.  

It is time to protect his future.  
To think about how he will cope when the time comes to move to high school.  
What support will he receive then, if he doesn't have a statement in place to protect his needs?
Who will fund the laptop and other equipment that Occupational Therapy have advised he should use to enable him to keep up with the level of work he is expected to do as he gets older?

The application is going to be put through as a jointly between his school and myself which should hopefully help with the decision that is made, and we are lucky (in a way) that Boo has a clinical diagnosis, as this shows that his condition is not going to improve.  
His additional needs are caused by a genetic abnormality that is never going to go away, and he is never going to suddenly 'catch up'.

I fully expect to have a battle on my hands to get the Statement that Boo needs, but it helps to know that we have the support of his school and his care givers.
Now I just have to try and get my head around how it all works.

Have you been through the process to obtain a statement for your child?
Can you share any little tips on how to make the process a little less stressful?

Wish us luck.

Missy x